Join us in our efforts to support the

Alpha-1 Foundation!

This cause is very important to me. This is my story and how it began. In late 2014 at the age of 41 I was diagnosed as a ZZ Alpha with Alpha-1 Antitrypsin Deficiency (AATD).  Like most Alphas, my initial reaction to this rare condition was to be scared and confused. At that time, it was difficult to find PCP familiar with Alpha-1. Thankfully my PCP referred me to a wonderful pulmonologist Dr. Young who shared information, guidance and gave his support for over 8 years before retiring in 2022.  I will be ever grateful to him and his colleagues.

A little information on what is Alpha with Alpha-1 Antitrypsin Deficiency (AATD).  AAT deficiency is an inherited condition. AAT deficiency happens when one or both parents pass on to their children an abnormal version of a gene that regulates the production of the AAT protein. Depending on the condition of the inherited genes, a person’s AAT levels may be normal, reduced, or absent. When a person inherits an abnormal gene from each parent, it increases the severity of disease.

September is Riding for a Reason month!  Danny and I will be going this year to Cape Cod, MA to volunteer and to raise awareness and funds for Alpha-1. I am asking for your help, and your donation will help support the great programs and research conducted to find a cure for Alpha-1. Any contribution is greatly appreciated. 

#Alpha1RidingforaReason to share your pictures!