Welcome to My Personal Page
Join me in my efforts to support the
Alpha-1 Foundation!
Alpha-1 Antitrypsin Deficiency, usually referred to as Alpha-1 or AATD, is a serious and rare genetic condition affecting the lungs and the liver. It is often mis- or undiagnosed as in the case of my mother who died in 1995. I was lucky to be diagnosed in 2016 after being medically followed for ten years for shortness of breath. Since then I have been receiving weekly infusions of the antitrypsin protein in which my body is deficient. I recently learned at an Alpha-1 educational that this therapy adds an average of 7-8 years to life expectancy of those with Alpha-1. Since this is a rare condition, drug companies don't find it profitable to invest in research for a cure or development of more effective treatments. Your donation will help support the great programs and research conducted to find a cure for Alpha-1. Other members of my extended family including a young great niece have been diagnosed. I am raising money for me, my relatives, and the millions of others alive now and in future generations whose lives will improve as a result of your donation.
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