My Journey with Alpha-1
Join me in my efforts to support the
Alpha-1 Foundation!
In 2013 I was diagnosed with a genetic disease, Alpha-1 Antitrypsin with genome ZZ, serum level 16. (You can look this up to see how this matters,) From 2103-2017 my lungs worsened 3x what they should for my age. I then started and continue weekly infusions to slow the progress of this disease.
Therapy slows but not reverses the progression of the lung destruction associated with this disorder.
So far it is helping a lot. I am participating in this bike event to raise awareness and money to support research for this disease. My children are MZ and I ride for them as well.
If you are able to help me toward my goal of $500 I would so much appreciate it. My riding goal is 55 miles September 23 and 44 miles September 24. You can donate right online in any amount. Please consider supporting this cause and google Alpha-1 to learn and raise awareness for you and your family.
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