Join me in my efforts to support the
Alpha-1 Foundation!
This cause is very important to me. Your donation will help support the great programs and research conducted to find a cure for Alpha-1. Your contribution is greatly appreciated. You can also join my team Liver Affected Alpha Warriors and walk virtually to support the cause.
Alpha 1 Antitrypsin deficiency is a genetic disorder that can involve both liver and lungs contributing to the disease of both organs as well as promote many other autoimmune, neurologic diseases and cancers within affected organs. There is no cure currently.
I was diagnosed in April 2022. I am an Alpha ZZ which is the lowest levels of deficiency and the most at risk for disease with an 80% chance of being lung affected. I have already been liver affected with a diagnoses of non alcoholic fibrosis stenosis/cirrhosis stage 3. and other underlying blood disorders, autoimmune and neurological diagnoses. I cannot control the disease, but I can control how to be as healthy as I can and will be walking the walk virtually. Keep on keeping on!